{"id":3675,"date":"2018-07-13T09:27:33","date_gmt":"2018-07-13T14:27:33","guid":{"rendered":"https:\/\/www.osfhealthcare.org\/blog\/?p=3675"},"modified":"2022-04-22T09:01:36","modified_gmt":"2022-04-22T14:01:36","slug":"pediatric-rehabilitation-helps-baby-reach-milestones","status":"publish","type":"post","link":"https:\/\/osf-blog.live.imagescape.com\/blog\/pediatric-rehabilitation-helps-baby-reach-milestones\/","title":{"rendered":"Pediatric rehabilitation helps baby reach milestones"},"content":{"rendered":"

Matthew and Samantha Monk were expecting their first child. But 17 weeks into Samantha\u2019s pregnancy, a sonogram showed the baby\u2019s diaphragm had not formed properly. His liver, stomach and bowels were developing in his chest, leaving little room for the lungs to grow.<\/p>\n

On October 11, 2017, at 39 weeks pregnant, Samantha, a Pediatric Intermediate Unit nurse at OSF HealthCare Children\u2019s Hospital of Illinois<\/a>, gave birth to their son, Harlan, at OSF HealthCare Saint Francis Medical Center<\/a>. Though the couple were thrilled to meet their son, they knew this was just the beginning of a long road ahead for him.<\/p>\n

Road to recovery<\/h2>\n

\"baby<\/p>\n

At only 5 days old, Harlan underwent surgery to correct his condition, called a congenital diaphragmatic hernia<\/a> or CDH, performed by Dr. Charles Aprahamian<\/a>, a pediatric surgeon at OSF Children\u2019s Hospital.<\/p>\n

\u201cI\u2019ve cared for some children with CDH as a nurse and have seen some of the challenges children with CDH can face,\u201d Samantha said. \u201cBeing on the other side of things this time was difficult. The surgery is the first step with CDH patients, but there are usually long-term issues to face like feeding, breathing or weight gain issues.\u201d<\/p>\n

After a successful surgery, Harlan was doing well, but soon he took a turn for the worse. His lungs weren\u2019t providing enough oxygen to his body. He was put on life support, which helped give his lungs the break they needed. One week later, his lungs were functioning better on their own.<\/p>\n

Harlan spent the next three months in the Neonatal Intensive Care Unit (NICU) where his journey with OSF Rehabilitation<\/a> began.<\/p>\n

From the moment Harlan was born, his care team focused on the CDH. He wasn\u2019t able to feed like typical newborns for the first few weeks of his life. So Harlan began feeding therapy right away.<\/p>\n

\u201cThey gave him breast milk tastes to prevent him from getting an oral aversion to it and also helped us with bottle feeding,\u201d Samantha said. \u201cHarlan was uncoordinated at first. The rehab team worked with us on ways to make it easier. They kept encouraging us, making small gains feel like huge accomplishments.\u201d<\/p>\n

Building strength<\/h2>\n

\"Baby<\/p>\n

Harlan was released from the NICU at 3 months old only to be readmitted to the hospital two days later because he wasn\u2019t able to keep food down. He spent the next two weeks in the Pediatric Intermediate Unit (PIC) at OSF Children\u2019s Hospital.<\/p>\n

While in the PIC, Harlan was evaluated for physical and occupational therapy, helping the Monks understand what milestones Harlan should be hitting.<\/p>\n

Two weeks after being in the PIC, Harlan was released to go home, where he was able to stay. That\u2019s when he began outpatient rehabilitation services, including physical, occupational and continued feeding therapy at OSF Children\u2019s Hospital clinic at Five Points in Washington<\/a>.<\/p>\n

\u201cHis core muscles weren\u2019t as strong as they should have been because of his abdominal issues,\u201d Samantha said. \u201cHe really disliked tummy time, so they taught me different ways to do that without him thinking he was really on his stomach \u2013 among other exercises to build his strength.\u201d<\/p>\n

Today, Harlan is a joyful, healthy, 8-month-old. He goes to therapy every two weeks where he has been recently working on fine motor skills, sitting up and trying solid foods.<\/p>\n

\u201cIn terms of milestones, he is at or close to his age group,\u201d Samantha said. \u201cHe has come so far in the last five months. I can\u2019t say thank you enough to the pediatric rehab team for how much they\u2019ve helped Harlan and encouraged our family.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"

Matthew and Samantha Monk were expecting their first child. But 17 weeks into Samantha\u2019s pregnancy, a sonogram showed the baby\u2019s diaphragm had not formed properly. His liver, stomach and bowels were developing in his chest, leaving little room for the lungs to grow. On October 11, 2017, at 39 weeks pregnant, Samantha, a Pediatric Intermediate […]<\/p>\n","protected":false},"author":25,"featured_media":3799,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_lmt_disableupdate":"","_lmt_disable":"","footnotes":""},"categories":[116,223,294],"tags":[67,142,372,102],"coauthors":[690],"class_list":["post-3675","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-pediatrics","category-patient-story","category-rehabilitation","tag-breast-milk","tag-childrens-hospital-of-illinois","tag-osf-saint-francis","tag-rehabilitation"],"yoast_head":"\nOSF HealthCare pediatric rehabilitation at helps baby reach milestones<\/title>\n<meta name=\"description\" content=\"An early detection of several medical conditions that required surgery at just five days old led Harlan to OSF Rehabilitation and on the road to recovery.\" \/>\n<meta name=\"robots\" content=\"index, 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